Parent-Mediated Intervention For Autism Spectrum Disorder (ASD) South Asia (PASS)
Project Title
Parent-Mediated Intervention for Autism Spectrum Disorder (ASD) in South Asia (PASS)
Year
2015
Collaborators
London School of Hygiene & Tropical Medicine, London, UK, Royal Manchester Children’s Hospital, Manchester, UK, Manchester Academic Health Sciences Centre, Manchester, UK, University of Manchester, Manchester, UK, Stockport Foundation Trust, Stepping Hill Hospital, Stockport, UK, University of Liverpool, Liverpool, UK, Sangath, Goa, India, Institute of Psychiatry, Rawalpindi Medical College, Pakistan & Human Development Research Foundation, Islamabad, Pakistan
Project Information
Autism Spectrum Disorders (ASDs) account for 4.2% of the Disability Adjusted Life Years (DALYs) attributed to mental disorders. A mean global prevalence of ASD is estimated to be 1%. Majority of the children with ASD live in low resource settings, where there is lack of evidence based culturally adapted interventions and specialist personnel to deliver these interventions. Parent-Mediated Intervention for Autism Spectrum Disorder (ASD) in South Asia (PASS) project aimed to adapt, implement and evaluate a parent mediated intervention from the Preschool Autism Communication Trial (PACT) trial for ASDs in low resource settings of Pakistan and India.
The parent-mediated intervention targets social interactive and communication impairments in children with ASD and increases parental sensitivity and responsiveness to child communication by one-to-one working with the parent and using video-feedback methods to address parent-child interaction. Using a systematic adaptation process, the Preschool Autism Communication Therapy (PACT) was contextually adapted to be delivered by non-specialists in low resource settings of South Asia. The findings of randomized evaluation showed that an evidence-based intervention for core features of autism, delivered by specialists in a High-Income Countries (HICs), can be adapted to be delivered with fidelity by non-specialists in Low- and Middle-Income Countries (LMICs).
Publications
- Divan, G., Hamdani, S. U., Vajartkar, V., Minhas, A., Taylor, C., Aldred, C., … & Patel, V. (2015). Adapting an evidence-based intervention for autism spectrum disorder for scaling up in resource-constrained settings: the development of the PASS intervention in South Asia. Global Health Action, 8(1), 27278.
- Minhas, A., Vajaratkar, V., Divan, G., Hamdani, S. U., Leadbitter, K., Taylor, C., … & Rahman, A. (2015). Parents’ perspectives on care of children with autistic spectrum disorder in South Asia–Views from Pakistan and India. International Review of Psychiatry, 27(3), 247-256.
- Rahman, A., Divan, G., Hamdani, S. U., Vajaratkar, V., Taylor, C., Leadbitter, K., … & Green, J. (2016). Effectiveness of the parent-mediated intervention for children with autism spectrum disorder in south Asia in India and Pakistan (PASS): a randomised controlled trial. The Lancet Psychiatry, 3(2), 128-136.