FaNs for Kids
Project Title
Family Networks (FaNs) for Kids
Year
2016
Collaborators
Grand Challenges, Canada, Autism Speaks USA, World Health Organization (WHO), Geneva, Switzerland, University of Liverpool, UK & Human Development Research Foundation, Islamabad, Pakistan
Project Information
In Pakistan, children with developmental disorders face three issues in accessing the care they need. First, the lack of awareness and stigma surrounding developmental disorders, which means that children are often seen as burdens to their family, and discriminated against in their communities. Second, poor awareness of the condition in family members and front-line health providers leads to a delay in recognition and inappropriate management. Third, a weak healthcare system and low public spending on health meaning children aren’t hooked into strong referral networks, and where specialist services are rare, especially in rural areas.
Family Networks (FaNs) for Kids is a supportive network that uses technology to identify and train families and caregivers who have a child with development delays to help them care better for their children. FaNs aims at breaking down stigma and closing the care gap for children with developmental disorders in rural areas of Pakistan. FaNs does this by organising, training and empowering the families of affected children into self-sustaining networks who are able to care for their own children and advocate for their needs to the community and the health system.
Through the platform of FaNs, we offer WHO endorsed Caregivers Skills Training Programme for the caregivers of children with developmental disorders. The training programme is based on principles of applied behaviour analysis, developmental science, social communication interventions, positive parenting, and self-care methods. The programme aims to improve (a) the child’s development, specifically in regard to promoting social communication and adaptive skills and reducing disruptive and challenging behavior; (b) the caregiver–child relationship; (c) the child’s participation and inclusion in daily home and community activities; (d) the caregiver’s role and functioning, by promoting self-confidence, parenting skills and knowledge, and coping skills and psychological well-being; and (e) create self-sustaining ‘family networks’ led by champion caregivers within local communities to increase caregivers access to community resources and referral pathways to ensure optimal care.
Impact
FaNs for Kids was delivered in a rural Pakistani population of ~30000 by the Human Development Research Foundation (HDRF), The University of Liverpool and the Institute of Psychiatry-Rawalpindi Medical College, and funded by Grand Challenges Canada (GCC).The programme was successful in establishing 1 self-sustaining Family Network consisting of 10 trained champion family volunteers working under supervision of specialists, delivering FaNs programme to 70 families of children with developmental disorders. A pre-post evaluation of the programme indicated that there was significant improvement in disability and socio-emotional difficulties in the child, reduction in stigmatizing experiences, and a greater family empowerment to seek services and community resources for the child.
Publications
- Hamdani, S. U., Akhtar, P., Huma, Z., Nazir, H., Minhas, F. A., Sikander, S., Wang, D., … & Rahman, A. (2017). WHO Parents Skills Training (PST) programme for children with developmental disorders and delays delivered by Family Volunteers in rural Pakistan: study protocol for effectiveness implementation hybrid cluster randomized controlled trial. Global Mental Health. 2017; 4: e11.
- Hamdani, S. U., Atif, N., Tariq, M., Minhas, F. A., Iqbal, Z., & Rahman, A. (2014). Family networks to improve outcomes in children with intellectual and developmental disorders: a qualitative study. International journal of mental health systems, 8(1), 1-8.
- Hamdani, S. U., Minhas, F. A., Iqbal, Z., & Rahman, A. (2015). Model for service delivery for developmental disorders in low-income countries. Pediatrics, 136(6), 1166-1172.
Relevant Links
- MIHN. The FaNs for Kids Project
- Ember. Family Networks (FaNs) for Kids trains, organises and empowers family members of children with developmental disorders to provide better care for their children, and become stigma-busting advocates in their communities.
- Finding a ray of hope: FaNs for Kids’ story
- FaNs Website